My Journey with Adenomyosis (The Short Version)

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I started writing this post back in April after receiving an email from my insurance company. They were telling me that April is Adenomyosis Awareness Month.

At first, I shoved the email away. After stewing for a bit, I realized that my experiences with this condition could actually benefit someone.

 

Initial Feelings About Blogging

I’m honestly terrified to enter the blog-o-sphere. The biggest reason I have for writing this article (aside from God leading me to) is that I wished it existed back in 2021.

 

My Adenomyosis Journey

 

The Beginning

I’ve had violent cramps since I started my cycle (the Friday before sixth grade). My parents took my curled-up self to the emergency room countless times until we realized they would only send me away with pain meds and info packets about ovarian cysts to discuss with a GYN.

 

2021-Now

Two months after marrying my best friend, I found myself back in a cycle of emergency room visits.

After many images, consultations, and medication trials, I was “clinically” diagnosed with Adenomyosis.

I say “clinically” because a definitive diagnosis comes from a pathologist after a hysterectomy.

I’d like to have kids, so an educated guess was as good as I was going to get.

I spent months researching

• Adenomyosis,
• Endometriosis,
• Why my pelvic pain decided to become chronic, and
• Why the rest of my body followed suit.

My primary care doctor prescribed me a wheelchair, I did months of pelvic floor physical therapy, and then traveled to Boston for minimally invasive surgery (I live in Georgia by the way).

I had an Endometriosis Resection with a Mirena IUD inserted.

There was no endometriosis found during the surgery. They did, however, find chronic inflammation in my uterine wall, and multiple signs of Adenomyosis.

A few months post-surgery, my insides felt like they were being repeatedly stabbed. At first, doctors thought I had a stomach bug. Imaging later showed that my IUD popped out of place.

So, I had it removed.

I don’t plan on inserting another one any time soon. I never want to feel the removal pain/discomfort again. Once was enough for me! I’m not trying to scare anyone; I’m just super sensitive!

I’m sticking with my pelvic floor physical therapy exercises for now. I need my life to not revolve around my medical needs for a little while.

 

Conclusion

I’m clutching God’s hand throughout this journey because I know there’s a purpose for all this. I’ve learned so much throughout this season of forced rest and self-reflection. My husband and I have grown so much closer taking on this challenge together. I hope I can encourage others through talking about this and whatever else comes from this blog.

This is the short version of my journey. More details will come in future posts!

 

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